Toddlers (1-2 years)
Eligibility
Individuals of all ages with a professional diagnosis of autism and their family members may participate.
Purpose
SPARK: Simons Foundation Powering Autism Research and Knowledge is a landmark national autism research study designed to speed up research and advance our understanding of autism to help improve lives. SPARK will collect unique information from thousands of individuals affected by autism to give researchers the information they need to improve treatment and achieve scientific advances as rapidity as possible. More participants in SPARK means more good data for research.
Involvement
Participation in SPARK can be done entirely at home – registration can be completed online and the DNA sample can be provided using a saliva collection kit mailed to the home. There is no cost to participate.
Benefits
Upon completion of the registration process, the individual with autism will receive a $50 gift card.
Contact
Raquel Amador: RaquelAmador@mednet.ucla.edu
For more information visit https://sparkforautism.org/?code=ucla
Learn more about SPARK for Autism!
¿Qué es SPARK?
SPARK es el mayor estudio sobre el autismo que se ha realizado hasta la fecha y potenciará la investigación sobre el autismo en los próximos años. Creemos que para encontrar respuestas para usted, necesitamos entender lo que le hace único. Y lo que le conecta con los demás. Lo hacemos mediante el estudio de la información genética, conductual y médica.
¿Quién puede unirse?
¿Es padre o madre de un(a) hijo(a) con TEA? ¡Únase a nosotros! ¿Es una persona con un diagnóstico de TEA? Necesitamos de usted. No hay ningún costo para usted y mantenemos sus datos privados.
¿Cómo puede participar?
- Cree una cuenta en línea.
- Invite a miembros de la familia.
- Entregue una muestra de saliva para el análisis de ADN.
- [Descubra y participe en nuevas oportunidades de investigación sobre el autismo].
Contacto:
Raquel Amador: RaquelAmador@mednet.ucla.edu
Eligibility
If you have a child between the ages of 12-36 months, and with a clinical diagnosis of TSC, you may be eligible to participate in this study.
Purpose
The purpose of this study is to examine the effects of behavioral intervention on social-communication skills in infants and toddlers with Tuberous Sclerosis Complex (TSC), and to identify behavioral strategies required to maximize treatment outcomes in infants with TSC.
Involvement
Participation requires attending 1-hour behavioral intervention classes at UCLA for 12 weeks. Because this behavioral intervention is parent-mediated, a parent must be available to attend the sessions. Participants are also given four behavioral assessments before entry into behavioral intervention, after exiting intervention, and at 4-month and 1-year follow up visit. Behavioral assessments generally take up to 3 hours to complete and can be completed over one or two days.
Benefits
Participants will be integrated into an existing early intervention study targeting social communication function in infants.
Contact
Carly Hyde
(310) 825-8738
chyde@mednet.ucla.edu
Eligibility:
Individuals with Angelman Syndrome (ages 1-12 or 18 and over), Typically Developing Children (ages 1-12)
Purpose:
This is a prospective, longitudinal, non-drug study at one or more clinical centers in individuals with AS and in volunteers (typically developing controls) with the aim of characterizing sleep features, electrophysiological abnormalities, and neurodevelopment in individuals with AS over a range of ages and genotypes.
Involvement:
Each participant will be evaluated at 2 clinic visits (at the start and the end of the study), at up to 3 home visits for EEG and overnight polysomnography (PSG) (up to 8 weeks after Clinic Visit 1, 3 months, after Home Visit 1, and 6 weeks or less before Clinic Visit 2), and with digital and report measures for 12 months at home. Study assessments will comprise various questionnaires and assessments to be completed by clinical evaluators, participants, and/or their parents/caregivers including exploratory remote patient monitoring.
Benefits:
The outcome of this study will help to improve the tests and scales used in the evaluation of Angelman in the future. You will also be compensated $263 for each visit to UCLA and $132 for each home visit that you complete. Additionally, all study-related assessments will be provided at no cost and you will be reimbursed for all travel expenses.
Contact:
Careese Stephens (cmstephens@mednet.ucla.edu) at 310-206-7404 or Logan Shurtz (lshurtz@mednet.ucla.edu) at 310-825-0180.
Click here to view flyer.
Eligibility
- Have child between the ages of 2-8 years
- Individuals have medical diagnosis of ASD or educational classification
- Individual does not receive services for ASD
Purpose
This is a parent-based intervention to help families gain earlier access to services for ASD for their child.
Involvement
Parents/caregivers must be available to participate in a year long study. Study involvement is either 25 hours or 12.5 hours for the entire year, depending on what randomized cohort the individual is desginated. The study sessions will be completed at the individual’s location of choice (example: home or UCLA)
Benefits
- Participants will receive a $20 gift card at three distinct time points, upon completion of required surveys.
- Participants will learn how to navigate the service system for ASD.
Contact
Consuelo Garcia
310-825-4775
cogarcia@mednet.ucla.edu
Eligibility
- Children between the ages of 2-16
- Individuals with an ASD diagnosis who are currently receiving services
- Can speak in either phrase speech (2 words with a verb) or are verbally fluent
Purpose
The purpose of the BOSCC is to provide a standardized and efficient method of measuring change in social and communicative behaviors in people with neurodevelopmental disorders over a relatively short period of time (minimum 8-12 weeks). This study aims to assess the BOSCC’s sensitivity for children who can speak in simple sentences (2 word phrases containing a verb) or who communicate in complex sentences.
Involvement
This study involves two visits to UCLA, about 8-12 weeks apart, in which we conduct the BOSCC assessment (12-minute free play assessment with a standard set of toys).
Benefits
Families will receive $25 for each visit to UCLA, totaling $50 for both visits.
Contact
Chrissie Toolan, PhD: ctoolan@mednet.ucla.edu
Eligibility
You and your child may be eligible if:
- Your child has a clinical TSC diagnosis
- Your child is between the ages of 12-36 months
- English is the primary language spoken at home
- Parent is available twice weekly for remote video conference calls
Purpose
The purpose of this study is to examine an evidence-based caregiver training program based on the behavioral intervention called JASPER (Joint Attention, Symbolic Play, Engagement, and Regulation), to improve access for the TSC community.
Involvement
This study involves two meetings with study staff and potentially twice weekly remove meetings via remote video conference calls. The total study is 6 months.
Benefits
Participants will receive:
- Free assessments of communication, cognitive, and play
- Free evidence-based intervention
- $150 for study completion
Contact
Maria Pizzano at mpizzano@mednet.ucla.edu
310-206-1268
(PI: Connie Kasari)
Eligibility
You and your child may be eligible if:
- Your child is 18 months to 5 years of age
- Your child is minimally verbal - has little or no spoken language
- Your child has a confirmed or suspected diagnosis of autism spectrum disorder (ASD)
Purpose
SPROUT aims to promote language and social communication skills for children with ASD.
Involvement
- Comprehensive play-based and behavioral assessments
- Parent questionnaires
- 10-20 weeks of intervention
Benefits
Participants will receive:- JASPER (Joint Attention, Symbolic Play, Engagement, and Regulation), an evidence-based intervention
Contact
James Yang: wsyang@mednet.ucla.edu
310-983-1057
(PI: Connie Kasari)
Get Study Flyer
