Cancer patient and survivor research from the cancer information service research consortium: a preview of three large randomized trials and initial lessons learned.
|Title||Cancer patient and survivor research from the cancer information service research consortium: a preview of three large randomized trials and initial lessons learned.|
|Publication Type||Journal Article|
|Year of Publication||2013|
|Authors||Marcus AC, Diefenbach MA, Stanton AL, Miller SM, Fleisher L, Raich PC, Morra ME, Perocchia RSlevin, Tran ZVu, Bright MAnne|
|Corporate Authors||CISRC Research Team|
|Journal||J Health Commun|
|Keywords||Aged, Breast Neoplasms, Female, Follow-Up Studies, Humans, Information Services, Internet, Male, Middle Aged, Multimedia, Patient Education as Topic, Patient Satisfaction, Program Evaluation, Prostatic Neoplasms, Randomized Controlled Trials as Topic, Survivors, Telephone|
The authors describe 3 large randomized trials from the Cancer Information Service Research Consortium. Three web-based multimedia programs are being tested to help newly diagnosed prostate (Project 1) and breast cancer patients (Project 2) make informed treatment decisions and breast cancer patients prepare for life after treatment (Project 3). Project 3 also tests a telephone callback intervention delivered by a cancer information specialist. All participants receive standard print material specific to each project. Preliminary results from the 2-month follow-up interviews are reported for the initial wave of enrolled participants, most of whom were recruited from the Cancer Information Service (1-800-4-CANCER) telephone information program (Project 1: n =208; Project 2: n =340; Project 3: n =792). Self-reported use of the multimedia program was 51%, 52%, and 67% for Projects 1, 2, and 3, respectively. Self-reported use of the print materials (read all, most, or some) was 90%, 85%, and 83% for Projects 1, 2, and 3, respectively. The callback intervention was completed by 92% of Project 3 participants. Among those using the Cancer Information Service Research Consortium interventions, perceived usefulness and benefit was high, and more than 90% reported that they would recommend them to other cancer patients. The authors present 5 initial lessons learned that may help inform future cancer communications research.
|Alternate Journal||J Health Commun|
|PubMed Central ID||PMC4242510|
|Grant List||5P01CA057586 / CA / NCI NIH HHS / United States |
P01 CA057586 / CA / NCI NIH HHS / United States
P30 CA046934 / CA / NCI NIH HHS / United States
P30CA06927 / CA / NCI NIH HHS / United States